Can we be honest for a minute?
Autism is hard! Gee what a shocking statement huh? But not just having a child on the spectrum or dealing with the day-in and day-out issues of having a child with autism…but on weekends.
My wife and I were talking the other day and we both agreed that our weekends are E-X-H-A-U-S-T-I-N-G!
Some would say that I am a workaholic. I love my job and get great pride and satisfaction and enjoyment from what I do…but it’s a cake walk compared to weekends. Weekends are harder work than just about anything else for our family…and that SUCKS!
Do you have these issues as well? Would love to hear your thoughts and stories.
I don’t care about sleeping in on a Saturday. I typically get up during the week around 5:15 AM so if I sleep until 6:30ish on a Saturday (the customary time our son comes into our room for the day) then that’s fine. Would I like to sleep until 7:00 AM on a Saturday? Sure. But I’m not cranky or anything if that’s not the case.
It’s that we run out of things to do. Are families with typical children like this? I don’t think so.
Our son is now 7-years-old and he doesn’t play weekend soccer. He’s not in little league or Pop Warner or anything like that. From what it seems, the majority of our friends with kids of similar age are spending countless hours going to games, practices and whatnot on Saturday mornings…not us.
We get up early, I typically will make pancakes or some breakfast, the kids will play or jump around until breakfast. Then it’s on…
What do we do after that? It’s 8:30 AM and we’re already looking for things to do.
We live in Texas…if you’ve never been to Texas in the summer…it’s H-O-T early and often…so playing outside for more than 30 minutes is not fun nor is it a good idea…so until it cools down, there go opportunities to go to the park, take the dog for a walk, do anything outside…it’s just too blazin’ hot!
My son doesn’t like to watch TV. He will play with the iPad for a few minutes but he’s not fixated on it for hours and hours. He doesn’t like to play with his toys…any of them…he doesn’t have a hobby. Right now he likes to jump on his mini-trampoline and tap, tap, tap on various objects…not really something that kills a lot of time.
We try and go to the local children’s museum…and we all love that and have passes…but there are only so many times you can go to that…pretty soon it starts to get a little mundane and our 5-year-old daughter wants to go other places.
We’re running out of things to do. We try and take naps (mainly because mommy and daddy like naps) but most of the time our son will not rest during the day…so he paces the house making his noises and tapping and jumping…not conducive to a restful environment.
It’s really around 3:00 to 6:00 PM that is the hardest. Then it’s REALLY hot and we’ve already done breakfast, watch a short program or two, played iPad, gone to museum, eaten lunch, tried to nap…and yet we still have a huge chunk of the day left.
Can you see how weekends are so exhausting?
I want to take a few minutes and kick my feet up and relax. I don’t want to have to be “ON” all the time on a weekend. It’s hard taking the kids on errands so we don’t get tasks done that need to be done.
I’ll take the kids to the grocery store or Lowe’s some weekends just to get them out of the house.
UGH…can you sense the frustration? When my son gets bored then he starts disobeying, having tantrums, getting into trouble and becoming a major grouch.
I don’t want to loathe weekends. We want to spend time as a family together. We want to do fun things and have good down-time and all that…but it doesn’t seem possible.
We are going to meet another family with a child on the spectrum this weekend and are going bowling…looking forward to that.
Thoughts???? Suggestions???? Let us hear from you!
To read more blogs from Seth and TheFowler4Group, check out their Website (www.lookatmyeyes.com) and while you’re there, buy a copy of their book, “Look At My Eyes”. Or find them on YouTube. To contact TheFowler4 Group email: firstname.lastname@example.org