Tag Archives: Daddy Autism

“He was there…then he wasn’t”

How many times have we heard that phrase when talking to parents with a child on the autism spectrum?

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While we never experienced William acting “typical” (remember – we don’t say “normal” bc what does that even mean?) when he was an infant, we certainly talked to a number of parents who swear up-and-down that their child was acting and behaving differently before they gave medicines and shots.

This is NOT a blog to discuss vaccines and MMR shots and whatever…mainly because I don’t care to get into that tired discussion AND…who am I to say that someone’s child was acting one way until they administered a shot and then they started acting differently.

eyes4BUT…we have recently experienced something like that.

William is now 13-years-old…would put him somewhere in the middle of the pack when it comes to autism.  He’s not that verbal or self-sustaining but then again he is really smart at spelling and loves to jump and can follow instructions (when he wants to.)

The Pink Stuff

Over the holidays we noticed he wasn’t himself so we went to the doctor and got him a prescription of The Pink Stuff…you know…Amoxicillin

This wasn’t first time we’ve given him this medication.  William is a fantastic medicine and pill taker…too bad there’s not a job for that!

eyes5He started the potion and after a few days we started noticing a significant change in his behavior.  It was almost as if a light switched on inside him.  We noticed he stopped stimming with his favorite item.

We noticed he stopped the constant non-verbal blabber we’ve grown so accustomed to.

We noticed he was calm…he was agreeable…he didn’t say “NO!” when we asked him to feed the dog, brush his teeth, put Chapstick on his dry lips and get dressed…he would do it with a happy heart and he would do it immediately.

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It was the craziest thing I think I’ve experienced

We drove to church on Sunday in complete silence…something we’ve never, never, never done because he’s always making sounds.

He came up to me and kissed me while I was working at my computer…no prompting, no nothing just a kiss and forehead bump (that’s out thing) out of the blue.

We wasn’t trying to upset our barking dogs.  He sat on the couch and watched a TV show with the rest of the family without squirming, getting up to tap, tap, tap.

I could go on and on.  It was a dream come true!!!  We were amazed.  His therapists were amazed.

 

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Then he was gone.

We started noticing anxious behavior this past Saturday.  Sunday he was still calm but there were spurts of sounds and stimming and the “no, no, no thanks, no thanks,” response we’ve grown accustomed to.

Tuesday was horrible.  I came home to learn that William lost three tokens (measures of good behavior) at school.  He didn’t want to hug me.  He didn’t want to clean his plate, brush his teeth, pet the dogs gently.

The noises were back too.  I remembered how much I hate, hate, hate that noise.

Where did William go????

Melanie’s done some research on Amoxicillin and autism and there might be something there.  Maybe it’s gut health – that is the problem du jour in America it seems that every network marketing company wants to cure.

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He’s had Amoxicillin before…he didn’t act like this before.  Will he do it again if we give him more of the Pink Stuff?

I’m not going to put a lot of hope in us giving him Amoxicillin again and him reverting to the New William…I don’t believe it’s that simple and I don’t want to get my hopes up.

All I know

All I know is that for about a week we experienced a calm and peace and love from our son that we’ve never experienced before.  We saw him interact with others in a manner that was foreign to us.  It was awesome…and I want more of it!

Buy The Book – Look At My Eyes

To read more blogs from Melanie, Seth and TheFowler4Group, check out their Website (www.lookatmyeyes.com) and while you’re there, buy a copy of their book, “Look At My Eyes”.  Or find them on YouTube.  To contact TheFowler4 Group email: info@thefowler4group.com

 

The Younger-Big Sister

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William and Margaret are the perfect Harry Potter and Hermione Granger

Seth Says…

Can you imagine being 5-years-old and being told that one day you’re going to take care of your older brother…and understanding what that means?

Looking back, maybe we shouldn’t have started telling Margaret (now 10-years-old) that, but we were just trying to be honest and to keep encouraging her to love her brother William (12-years-old).

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William wasn’t quite sure of what to think about Margaret at first

Recently in an interview with WORLD Magazine the reporter asked Margaret (we call her “Bubba”) for her thoughts and perspective.

“I mean, it’s not the easiest thing to understand and know what it really means when they say, ‘you’re going to take care of him (William),'” said Margaret.  “I guess I’ve never known any other way – and I’m okay with that.”

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Everyone always thinks this is the sweetest photo – in reality – William was trying to choke Bubba – trust me I was there and have the next photos to prove it

While only ten, she sure is mature beyond her years – and she’ll have to be forever.

Hopefully William and Margaret will continue to grow in their relationship and love for one another.  Sure they fight – she seems to get frustrated because he has a “different set of rules” from time-to-time…but she doesn’t realize how fortunate she really is in her situation — she gets A LOT of perks in her life.

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Even as they get older – they still enjoy being around one another – and that’s a relief!

She loves ballet.  She loves acting.  She loves her iPod Touch.  She loves talking to cousins on said iPhone.  She loves watching movies.  William isn’t into any of those things.

William got a trip with daddy to Disney World when he turned ten.  Bubba and daddy are going to NYC to see some shows!

Who knows what the future holds.  Melanie and I certainly want Margaret to experience the world and freedom that comes from leaving the home when the time is right.  The last thing we want is for her to feel a burden or obligation to be close to home while we are still around and able to manage William’s situation.

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What does the future hold?  Who knows.  But I do know that Margaret will ALWAYS love and care for her brother

But one day the younger sister will become caretaker…that makes me sad but grateful that God has created Margaret with such a soft heart for her brother.

To be continued…

To read more blogs from Melanie, Seth and TheFowler4Group, check out their Website (www.lookatmyeyes.com) and while you’re there, buy a copy of their book, “Look At My Eyes”.  Or find them on YouTube.  To contact TheFowler4 Group email: info@thefowler4group.com

change of heart

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Eight years ago, my husband became a father.

It started out the “usual” way…. rocking, loving, kissing, holding.

He was present in all of it. The baby stuff: baby carrying, baby changing…baby duty.

Honestly, for us, that was the easy breezy.

After the diagnosis, things definitely changed. Hearts were hurting.

Things got hard. I felt and saw the distance.

The “Dreading to come home and deal with the inevitable” look.

The “How am I going to relate to my son who doesn’t want or know how to relate?” look.

The “I can’t do this!” look.

With precious time and extensive therapy, <very extensive> the hope began to grow.

Hearts changed. His. Heart. Changed.

Many selfless acts followed. Many. Too many for you to comprehend.

Finding ways to connect became his mission. It became his way to love and support his son.

Thank you for finding ways.

Thank you for the selfless acts.

Thank you for being the father with a mission.

Happy Father’s Day to a father that really knows what that means.

To read more blogs from Melanie, Seth and TheFowler4Group, check out their Website (www.lookatmyeyes.com) and while you’re there, buy a copy of their book, “Look At My Eyes”.  Or find them on YouTube.  To contact TheFowler4 Group email: info@thefowler4group.com