Tag Archives: “dads and autism” “children with autism”

Autism and Cord Blood Stem Cells…what’s a father supposed to think?

Recently I was sent an online article from BioResearch Online entitled “Autism and Cord Blood Stem Cells: FDA Gives Green Light For Ground Breaking Clinical Trial.”

I know I may seem pretty darn smart (I tell myself that often) and I know I look super smart BUT I am at a complete loss when it comes to cord blood, stem cells, bioresearch and all that!  Of course I’ve heard of the terms, but after reading this article it certainly gave me a sense of hope.

Could my child really ever be “cured” of autism?  Is it right for me to have that hope?  What does this all mean?

A couple of things came to mind…I immediately wanted to know how I could sign up for the clinical trial.  What parent wouldn’t be interested in that?  I also started thinking…”what if we were part of the trial and were the placebo element of the trial?”  Would that suck or what?

If you’re a parent of a child on the autism spectrum you probably know where I’m coming from.  We’ll do just about anything to help our son, William, who is now 6-years-old.  Just imagine him talking to me.  Just imagine him not stemming or making that awful squealing noise CONSTANTLY during the day.  Just imagine him leading a “typical” lifestyle.

One of the key chapters in our book, Look At My Eyes that my wife and I wrote in 2011 (now available in Spanish as well Miarme los Ojos) discusses how important it is for the family to be unified in their decision for treatment, therapy and expenses when it comes to their child with autism.

I’ve seen (and experienced first hand) too many couples and families who have had major arguments and divisions when it comes to these issues.  No father wants to deny his child services…but not many fathers can actually afford to do every therapy, treatment or service…at least not this father.

When William was younger my wife, Melanie, would drive all over the DFW Metroplex (if you don’t know…it’s very big) to go to this doctor and that therapy and this activity…hoping to find a solution or therapy.

It was a HUGE strain on her, our son, the family checkbook and our relationship.  THE BIGGEST KEY to making the marriage survive when dealing with special needs children is to BE ON THE SAME PAGE!

I’m sure there are risks involved with this cord blood stem cell research…has to  be, there are risks with just about everything.  I don’t know if my wife would be as excited as I was when I read the article.  She might be more hesitant when it comes to the health of William and potential risks.

There are many “cures” out there…many that are medical or have medical claims but PLEASE BE CAUTIOUS…this is your child we’re talking about here.  A “cure” does not exist…so be careful not to put all your hope and trust in a claim that could potentially be harmful to your child.

Finally I thought, “do I want my son ‘cured’ from autism!?”  Is that twisted or what?  Yeah I want him cured.  Yeah I want him to be typical.  Yeah I want him to be happy.

But what if he IS happy?  I know he gets frustrated with lack of ability to communicate at times.  I know we are frustrated when we are dealing with his behaviors and such.  But does that mean he’s not happy?

Is it my happiness that I’m seeking or his?

Would William BE William if he took a magic pill or cord blood and didn’t have autism?

Have you considered that?  I don’t think I had until I read this article.  Almost like in The Matrix when Neo has a choice…take one pill and stay the same…take the other and your life is totally different and you can’t go back.

It’s not that easy of a decision is it?  On one hand you don’t want to deal with autism and all that stuff…but on the other hand, if your child is “cured” all of a sudden, are they the same child?  Different?  Better?  Worse?

In conclusion…bring on the trial.  The way our FDA and government work it’ll be 2040 before they approve or make a recommendation.  At least it’s a start–so who knows, maybe they’ll find a cure that will help children and change our society forever.

Meanwhile…take delight in your child.  Your child is YOURS…a gift, a blessing–no matter how much the stem or squeal or wipe poop on the floors.  Focus on the joys your child brings you when they are able to communicate….when they do look at your eyes

Be a team with your partner…be on the same page with finances, treatment and therapy.  Cord blood stem cell or not…love your child for who he/she is…yours!

To read more blogs from Seth and TheFowler4Group, check out their Website (www.lookatmyeyes.com) and while you’re there, buy a copy of their book, “Look At My Eyes”.  Or find them on YouTube.  To contact TheFowler4 Group email: info@thefowler4group.com…oh and they just released their book in SPANISH as well…buy it now!

Stripping for Autism…Go Away Jenny McCarthy!

So it’s a Monday morning and I get to my computer at work and I start checking the emails I received over the weekend and I see a link to a wonderful Website called Special Needs Book Review where they have been so gracious to read our book, Look at My Eyes and they interviewed me (a dad) and did a great job.

I was so excited to have the opportunity to share some thoughts with this great outlet–that is read by many, many parents (and hopefully dads) and just thrilled to be able to make more connections…not just to hopefully sell some books, but to reach as many people dealing with a child on the autism spectrum as possible.

I went to my friend and fellow dad with child with autism Stuart Duncan to post the link to the interview on his site…Stuart lives in Canada and I have never met him but I would consider him a friend and a fellow father fighting for his son!  Stuart and I have had a few conference calls together and have been featured in  publications together…so it’s a joy to share information with him and to read his posts and blogs.

And there it was…I opened his page to see that Jenny McCarthy is apparently taking her clothes off for Playboy all in the name of Autism. (Note: I am not going to link the article of Jenny making this announcement because I don’t want any more clicks on that bullshit as possible)

Can I explain how angry I am right now?  Probably not!  This is just a joke and an outrage and I’m so ticked off on so many levels.

Who make this fraud the Queen of Autism?  She’s all about “curing autism” and how apparently her son had it and is now “cured” or something…which would be amazing since I don’t think I’ve EVER heard of anyone being cured from autism…but maybe he’s extra-extra special.

She’s big into bio-meds and all the vaccines “caused” my son to have autism although all of the reports she hangs onto have been disproved and not deemed scientific at all.

Let me get this straight…this no talent, fake boob, D-list “actress” (if you could call her that) who wrote a book (big deal, I wrote a book too–and it’s actually a helpful book!) and claims to have all the answers to autism–apparently she’s extra super smart…she just plays dumb in her life…is now going to take her clothes off to “fund autism research”

I’d love to go on and on and on about how pissed off I am and how stupid the media is to even report this…this is nothing more than a pathetic cry for attention by an aging (yet beautiful still I’m sure) never-has-been person peddling her son’s diagnosis to get money.

Shame on you Jenny McCarthy!  You are a disgrace to your son and to all the parents out there who are truly fighting and scraping every last resource possible to help pay for medicine, therapy, testing, treatment, anything and everything to give our child a future!

You are hurting those of us who truly are trying to make a difference in the autism community.

You are a shame to your name…you decided taking your clothes off 20 years ago was the best and only way to make a name for yourself and to make money…that’s fine, that’s up to you…and kudos to you for maintaining your surgically enhanced looks at your age now where you are able to be comfortable in stripping for the Playboy again…if you’ve got it, flaunt it.

BUT DON’T PRETEND THAT YOU’RE DOING THIS TO HELP YOUR SON AND OUT OF THE KINDNESS OF YOUR BOTOXED HEART…call it what it is….you need money and you crave attention…great, but don’t pimp your child in order to get attention or make money.

You don’t like what I’m saying…you are free to contact me directly and I’ll give you my mobile number and would love to visit with you!  info@thefowler4group.com

Have some respect for yourself and for your child…have some respect for us parents with children on the spectrum that can’t sleep because of the fears and stresses of our daily lives and the thought of our children growing up unable to blend into society as we get older…

Keep your mouth shut, keep your clothes on…or at least don’t associate Autism when you do it!