Tag Archives: family

WORLD Magazine & the Fowler 4

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Seth & Melanie Fowler being interviewed by WORLD Magazine for upcoming podcast

Seth Says

In 2012, WORLD Magazine wrote an article on autism that featured our son, William.

Intense Isolation (2012) – World Magazine

After 6 years, WORLD reached out to us for an update on William and the rest of the Fowler 4.

On Sunday we had the privilege of sitting down with Katie Gaultney of WORLD to interview for an upcoming podcast regarding autism and William and other topics of interest. (we even made Katie cry!)

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Is there anything better than talking about topics you’re passionate about?  Look how serious Seth is!!!

It was a blast not only to have a microphone in your face (if you know me you’d know that there’s nothing more I enjoy doing than talking)  and giving Katie the update on the past 6 years but also to have William and Margaret (10-years-old now) talk and hopefully be featured as well.

I do not envy how Katie will whittle down 1 hour and 45 minutes, of us talking about a topic we are very passionate about, into a short podcast – but maybe they will make multiple podcasts or do whatever it takes to get the information out to the masses.

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Katie of WORLD had no idea of what she was getting in to – crying, long-winded speakers and Charley Bear (dog) that took special interest in her.

When the podcast is released I’ll be certain to let you know and will blast it to the masses – the more the better – maybe they’ll have us as regular guests!

Special thanks to WORLD, Susan Olasky and Katie Gaultney for taking interest in our cause and passion.  Let’s do it again

To read more blogs from Melanie, Seth and TheFowler4Group, check out their Website (www.lookatmyeyes.com) and while you’re there, buy a copy of their book, “Look At My Eyes”.  Or find them on YouTube.  To contact TheFowler4 Group email: info@thefowler4group.com

 

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Autism and Cord Blood Stem Cells…what’s a father supposed to think?

Recently I was sent an online article from BioResearch Online entitled “Autism and Cord Blood Stem Cells: FDA Gives Green Light For Ground Breaking Clinical Trial.”

I know I may seem pretty darn smart (I tell myself that often) and I know I look super smart BUT I am at a complete loss when it comes to cord blood, stem cells, bioresearch and all that!  Of course I’ve heard of the terms, but after reading this article it certainly gave me a sense of hope.

Could my child really ever be “cured” of autism?  Is it right for me to have that hope?  What does this all mean?

A couple of things came to mind…I immediately wanted to know how I could sign up for the clinical trial.  What parent wouldn’t be interested in that?  I also started thinking…”what if we were part of the trial and were the placebo element of the trial?”  Would that suck or what?

If you’re a parent of a child on the autism spectrum you probably know where I’m coming from.  We’ll do just about anything to help our son, William, who is now 6-years-old.  Just imagine him talking to me.  Just imagine him not stemming or making that awful squealing noise CONSTANTLY during the day.  Just imagine him leading a “typical” lifestyle.

One of the key chapters in our book, Look At My Eyes that my wife and I wrote in 2011 (now available in Spanish as well Miarme los Ojos) discusses how important it is for the family to be unified in their decision for treatment, therapy and expenses when it comes to their child with autism.

I’ve seen (and experienced first hand) too many couples and families who have had major arguments and divisions when it comes to these issues.  No father wants to deny his child services…but not many fathers can actually afford to do every therapy, treatment or service…at least not this father.

When William was younger my wife, Melanie, would drive all over the DFW Metroplex (if you don’t know…it’s very big) to go to this doctor and that therapy and this activity…hoping to find a solution or therapy.

It was a HUGE strain on her, our son, the family checkbook and our relationship.  THE BIGGEST KEY to making the marriage survive when dealing with special needs children is to BE ON THE SAME PAGE!

I’m sure there are risks involved with this cord blood stem cell research…has to  be, there are risks with just about everything.  I don’t know if my wife would be as excited as I was when I read the article.  She might be more hesitant when it comes to the health of William and potential risks.

There are many “cures” out there…many that are medical or have medical claims but PLEASE BE CAUTIOUS…this is your child we’re talking about here.  A “cure” does not exist…so be careful not to put all your hope and trust in a claim that could potentially be harmful to your child.

Finally I thought, “do I want my son ‘cured’ from autism!?”  Is that twisted or what?  Yeah I want him cured.  Yeah I want him to be typical.  Yeah I want him to be happy.

But what if he IS happy?  I know he gets frustrated with lack of ability to communicate at times.  I know we are frustrated when we are dealing with his behaviors and such.  But does that mean he’s not happy?

Is it my happiness that I’m seeking or his?

Would William BE William if he took a magic pill or cord blood and didn’t have autism?

Have you considered that?  I don’t think I had until I read this article.  Almost like in The Matrix when Neo has a choice…take one pill and stay the same…take the other and your life is totally different and you can’t go back.

It’s not that easy of a decision is it?  On one hand you don’t want to deal with autism and all that stuff…but on the other hand, if your child is “cured” all of a sudden, are they the same child?  Different?  Better?  Worse?

In conclusion…bring on the trial.  The way our FDA and government work it’ll be 2040 before they approve or make a recommendation.  At least it’s a start–so who knows, maybe they’ll find a cure that will help children and change our society forever.

Meanwhile…take delight in your child.  Your child is YOURS…a gift, a blessing–no matter how much the stem or squeal or wipe poop on the floors.  Focus on the joys your child brings you when they are able to communicate….when they do look at your eyes

Be a team with your partner…be on the same page with finances, treatment and therapy.  Cord blood stem cell or not…love your child for who he/she is…yours!

To read more blogs from Seth and TheFowler4Group, check out their Website (www.lookatmyeyes.com) and while you’re there, buy a copy of their book, “Look At My Eyes”.  Or find them on YouTube.  To contact TheFowler4 Group email: info@thefowler4group.com…oh and they just released their book in SPANISH as well…buy it now!

Talking to Family Members About your Special-Ism Needs Child

This blog was written for the WONDERFUL and HELPFUL Website: Special-ism.com.  It is an honor and privileged to write a monthly Daddy Blog for them.  Hope you enjoy…

Talking to Family Members About your Special-Ism Needs Child

If your situation was anything like ours—our first child was diagnosed with autismat age three—I’m sure you can relate to this blog.

Whatever the special-ism need…ADHD, anxiety, FASD, Autism, not important…there’s always that dreaded conversation that you are going to have with your family and friends about your child….

To continue reading…click