Tag Archives: i hate autism

a Skipper Too

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William’s legs are long.  Like, really long.  He’s always looked the same.  To put it into perspective, at birth, he weighed in at 6 lbs and yet his length was 22.5 inches. Yep, I told you, long!  He almost never wears a pair with the “worn” look because they’re off and then it’s on with another new and longer pair.

But, as I look at these long gangly legs, I am reminded about so much more than pant purchasing woes.  Over the past 8 years, these legs have entered more therapeutic facility doors and have endured more therapy hours than one can even conceive.

With these legs, he has achieved more success than I hope to in a lifetime.

These legs never crawled as a baby and standing and walking were HUGE milestones in more ways than one.

At one point, I thought these legs would never be able to run…

The plethora of hours in occupational and physical therapy certainly helped these legs reach their goal.  In fact, the goal was surpassed by mastering the “light” jog.  As William grew more strong and mobile, the “jog” one day became a “run.”

Every year, the Fowler Four participates in a phenomenally fun and meaningful 5k race and every year I am reminded of these long gangly legs and how far they have taken him… how far they have taken, us.

I continue to be blessed by each step that is mastered, his legs, his strength, his ability to tolerate hours upon hours of hard therapy and academics.

Guess what???  You will never.  These long gangly legs can now skip. <smile>

What has been accomplished that you never thought possible?

To read more blogs from Melanie, Seth and TheFowler4Group, check out their Website (www.lookatmyeyes.com) and while you’re there, buy a copy of their book, “Look At My Eyes”.  Or find them on YouTube.  To contact TheFowler4 Group email: info@thefowler4group.com

Ugh, ANOTHER thing I hate about Autism

The list is long and distinguished regarding the things I hate about autism…but this is the one on my mind…would LOVE to hear if this affects you and  your child and if so, what do you do about it?

William has these episodes of frustration or confusion where he starts spiraling and just can’t regroup and bounce back without major meltdowns or fits of rage.

For example…yesterday my wife picked him up from school and  he for some reason didn’t want the snack she gave him in the car.  He got frustrated with the snack and then when she took it away, he started freaking out.

Well what do you want?  The snack?  To eat it?  There’s almost like a no-win solution.

It got progressively worse.

We have these ABSURD radio stations in DFW that think it’s funny and cool to start playing Christmas music 24/7 starting the day after Halloween…it’s extremely annoying to me because I get very tired of the same 100 Christmas songs and why rush the holidays?

So William hears a Santa song…then they go home and watch a “Max & Ruby” (he loves those) and it’s about Christmas and so William can’t understand WHY there is no Christmas tree in our house.  He doesn’t understand the concept of time or seasons or anything like that.

He has a total meltdown…he cries and throws his favorite item (these days it’s hair brushes) and just can’t regroup and get it together.

So we turn off the video because he can’t handle it…to which he gets even more upset.

Have I mentioned a no-win situation?

We can’t start talking about going on a vacation or visiting family too soon because it doesn’t compute to him that we’re going to BeBe’s house…in a few days.  He thinks that because we’re talking about going somewhere, that it is going to happen immediately.

It’s really frustrating because we want to involve him in our activities and experiences and want to share the joy and excitement of anticipation and holidays and all that…but more often than not it ends up with him getting very upset and emotional and having a fit of frustration and rage.

Surely this happens to you too?  What are some tips to not have this happen or when they are spiraling, are there any ideas of how to regroup as quickly as possible and not have it turn into episodes?

To read more blogs from Seth and TheFowler4Group, check out their Website (www.lookatmyeyes.com) and while you’re there, buy a copy of their book, “Look At My Eyes”.  Or find them on YouTube.  To contact TheFowler4 Group email: info@thefowler4group.com